‘I don’t want him to suffer’

NINETY SIX — Dylan’s shock of dark hair attracts everyone’s attention when they meet him — at nearly 8 months old, he’s tall with rosy cheeks and striking blue eyes. 

On the outside, he appears healthy, his chubby legs constantly stretched out and his long hair pushed off his forehead.

Inside, Krabbe disease has ravaged his nerves. His parents hope he will live to see his first birthday.

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